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Fundraising pages for the benefit of The Pancreatitis Supporters Network:
If you want to donate to the Network you can now do this via text message!  Just text PSNB13 £10 to 70070 to send us £10, or any other amount.
Donate to us direct using you credit debit card by clicking the following link Gift Aid and we will be able to collect the Gift Aid added to your donation of 20p for every £1 donated.

Please donate to Louise Ansell who is running a half marathon for us!  Her Justgiving page is at http://www.justgiving.com/Louise-Ansell9

IMPORTANT ANNOUNCEMENT: Please note our Bank is changing it’s SORT CODE to 60-83-01 on 21st September 2015.  PLEASE make sure that you quote this in future on all Standing Orders.

Thank you to all raising money for us and to those who have donated. Without your efforts we would not be here.  Jim Armour, Chairman

Help, advice, support

The Pancreatitis Supporters’ Network provides medical information and support for sufferers of the condition called pancreatitis. On this site there is a database of medical information, advice for sufferers and carers, a discussion board and a pen pals network.  For more information, feel free to browse here.

Community Pancreatitis Support Forum  – Currently Online Discussion Board
Any login problems click this link to report the fault and get a quick response forum-help@pancreatitis-forum.org.uk
Kate Rist’s Blog http://kateandpancreatitis.blogspot.co.uk/

ACTIVITIES UNDERTAKEN BY THE ORGANISATION

Counselling and support to its members who either have Pancreatitis or who are partners, spouses, friends, colleagues of someone with Pancreatitis. Initial telephone contact can be up to two hours and this is free to anyone.

AIM:
The Association is established to advance the education of the public in all matters involving the medical condition known as Pancreatitis.

OBJECTIVE:
The Network was set up to educate both the public and the medical profession about the condition known as Pancreatitis. Also the importance of patients with Pancreatitis being treated by specialists in this field.

FORMATION:
On October 20th 1993 the Network was recognized as an official Charity by the Charity Commissioners for England and Wales with associated status and Charity Number 1027443.

Sponsors

The European Pancreatic Club (EPC) is looking for key industry partners to participate in the conference as sponsors and exhibitors. Sponsors and exhibitors can raise the visibility of their organisation and engage with a wise audience from around the world, all with an interest in pancreatic disease. A sponsorship and exhibition prospectus is available on-line at website to be confirmed

If you are interested in taking part in the conference as a sponsor or exhibitor please direct your enquiries to the combined EPC & IAP meeting secretariat, using the contact details below:

e-mail: bctaylor@liverpool.ac.uk

YOUR chance to get involved in NICE Guidelines for Pancreatitis!  Read on:

‘We are a local NICE accredited company who provide written content for NICE approved guidelines. We are currently looking for volunteer Reviewers to assist in the review process of our draft guidelines, prior to their publication.

We would like to invite members of organisation the opportunity to take part in this review process should they be interested. The level of involvement would be dictated by the volunteer themselves and they would advise us of the conditions they would be interested in assisting with and would be free to withdraw their help at any time.

We are in the planning stages of reviewing the following topics which may be of interest to your members:-

• Pancreatitis – acute
• Pancreatitis – chronic

The only personal information we would require from those who would wish to participate would be their name, their topics of interest and a contact email address. All of our current published guidelines can be viewed at http://cks.nice.org.uk

Whilst this information is written primarily for doctors and nurses we are keen to ensure that patient’s needs are being considered appropriately. We would like to ask people to read the topics as they are being written and answer a few questions regarding the language that is being used and whether there is evidence of encouragement of effective communication between the doctor and patient.

We are hoping to gain patient feedback throughout the development of the topic, including prior to writing and at draft and final document stage. We would like to ensure that the patient’s voice is heard’.

Please make YOUR voice heard by participating.  Thank you Jim Armour, Chairman.

 

8 thoughts on “Home

      • Thanks for that. I’ve had about 5 or 6 bouts of acute pancreatitis over the last 5 years. Went for endoscopy on wed and gave me a 5/9 score and wrote down its chronic pancreatitis possibly caused by pancreas divisum. (previously had a 3/9 score. Not alcohol or gallstone related). They did not say how I manage it, what happens next, life limiting? Nothing really. Just looking to find out how others are. How they manage, symptoms etc.

        Thanks

        John

  1. Becoming very scared as I feel I’m going to die with this cp as I am getting all sorts of problems now and I feel no one is letting me know whats going on.Had this for 20yrs now.Thanks

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