The Pancreatitis Supporters' Network
The Pancreatitis Supporters' Network
The organisation began as a small, informal self-group after the founder, Jim Armour, discovered he was suffering from Pancreatitis. It has now grown into an officially recognised organisation with world-wide links. Our perspective is that of the ordinary person rather than the qualified medic and we aim to provide information and support whenever and wherever we can.
The Network was set up in 1992 from initial information gained from the
British Diabetic Association about people with Diabetes and Pancreatitis.
I then contacted the Pancreatic Society of Great Britain and Ireland (who
are a Society of Medical members only) to find out if they would have some
input into the network and we now liaise closely with Professor John Neoptolemos
then- Reader in Surgery, Birmingham University, Queen Elizabeth Hospital., now
at The royal Free Hospital in Liverpool. As
a result of this work we have had produced three booklets in coalition
withf Duphar on:
.
On October 20th 1993 the Network was recognised as an official Charity by the Charity Commissioners for England and Wales with associated status and Charity Number 1027443.
Counselling and support to its members who either have Pancreatitis or who are partners, spouses, friends, colleagues of someone with Pancreatitis.
Newsletter sent out every 6 months on topics concerning Pancreatitis, informing members of what treatments are being researched etc.
Liaison with the Pancreatic Society of Great Britain and Ireland.
Assisting in the setting up of a similar organisation in South Carolina.
Liaising with Solvay Healthcare main manufacturer of enzymes for people with Pancreatitis.
Purchase of small items of equipment for members unable to buy them for themselves. Specifically ENM Devices which have helped members come off morphine. All we ask is that you join to qualify for one - presently 7.50pa.
Click one of these links for a
or here for a
Membership
form available as part of the Information Pack download.
Membership is £7.50 sterling per year April to April and for that you get 2 Newsletters a year and access to the telephone support line. Also, as and when we have them long term loan of ENM Devices.. If we know you are in hospital, and have the resources we will send you a bunch of flowers!
Telephone/Fax (0121) 449 0667
NOTE FOR THOSE NOT in the UK please email for Paypal Account details. In the Information Box please mark it CLEARLY Pancreatitis Supporters Network MEMBERSHIP.